The National Fragile X Foundation is a non-profit organization based in McLean, VA, dedicated to supporting families affected by Fragile X syndrome through community engagement, awareness education, and research initiatives.
They provide a range of resources and programs, including Fragile X clinics, treatment guidelines, and a research database, to help individuals and families navigate the challenges of living with Fragile X. Through their advocacy efforts and international conferences, they strive to raise awareness and promote understanding of Fragile X syndrome among professionals, caregivers, and the general public.
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