The Marfan Foundation is a nonprofit organization based in Rochester, MN that is dedicated to saving and improving the lives of individuals with genetic aortic and vascular conditions, such as Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome. They provide a supportive community and offer easy-to-understand resources for patients, families, healthcare professionals, and researchers.
With a primary focus on education and research, The Marfan Foundation is the go-to source for up-to-date and reliable information on these genetic conditions. They strive to empower individuals and their families on their medical journey, while also advocating for improved quality of life and raising awareness about these conditions. Through their various divisions and initiatives, they aim to create a united front in the fight against genetic aortic and vascular conditions.
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