Rett Syndrome Association International is a non-profit organization dedicated to accelerating research and providing support for individuals and families affected by Rett syndrome, a rare genetic neurological disorder. They are committed to improving the lives of those with Rett syndrome by offering resources, advocating for their needs, and investing in innovative research to find treatments and a cure.
With a focus on empowering families and advancing disease-modifying research, Rett Syndrome Association International strives to create a world without Rett syndrome. They offer a range of programs and initiatives, including clinical trials, a care companion web app, and a registry to gather valuable data. Through their efforts, they aim to transform the lives of individuals with Rett syndrome and provide hope for a brighter future.
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