Henry & Rose Pearlman Foundation Inc, US

The Hyper IgM Foundation is a leading organization dedicated to supporting individuals with Hyper IgM Syndrome, an extremely rare disease affecting a mere 1 in 1,000,000 people. With a focus on improving quality of life and providing vital resources, the foundation collaborates with medical professionals worldwide to enhance understanding of the condition and explore potential cures, such as bone marrow transplants. As a trusted resource for families and physicians, the Hyper IgM Foundation offers guidance on preventative care, treatment, and diagnosis, while fostering connections among those living with Hyper IgM. Additionally, the foundation keeps individuals informed about cutting-edge treatments and serves as a platform for research grants and gene editing studies, aiming to make a lasting impact in the field of rare diseases.Generated from the website