Defy Foundation, based in West Chester, PA, is a nonprofit organization dedicated to raising awareness and supporting individuals affected by Vascular Ehlers-Danlos Syndrome (VEDS). Through scientific meetings, events, and fundraising efforts, Defy works to make a positive impact in the VEDS community.
Powered by The Marfan Foundation, Defy collaborates with experts and advocates to provide resources, education, and hope for those living with VEDS. Join Defy in their mission to make a difference and improve the lives of those impacted by this rare genetic disorder.
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