Barth Syndrome Foundation Inc, based in Larchmont, NY, is a dedicated organization focused on supporting individuals and families affected by Barth Syndrome. Through a comprehensive range of programs and resources, the foundation aims to advance research, provide educational tools, and promote advocacy for this rare genetic disorder.
With a strong emphasis on scientific innovation and community engagement, Barth Syndrome Foundation Inc collaborates with leading clinicians, researchers, and international affiliates to drive progress in understanding and managing the complexities of Barth Syndrome. By offering a platform for information exchange and support, the foundation plays a vital role in enhancing the quality of life for those impacted by this condition.
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